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HONcode status
 
Certificate of compliance with the Code of Conduct HONcode


HONcode status The health Website
Parent's Guide To Cord Blood Foundation
is in compliance with the HONcode


Title of the site:Parent's Guide To Cord Blood Foundation
Web address:http://www.parentsguidecordblood.org/
HONcode PIN number :HONConduct456237
Date of initial review: 25 May 2001
Validity of certificate12 Aug 2011 - Aug 2013
Date of last visit12 Aug 2011

This certificate confirms the revision of the site by the HONcode Team at the above date.
It respects and pledges to honor the 8 principles of the HON Code of Conduct (HONcode).

* 1. Authoritative   2. Complementarity   3. Privacy   4. Attribution   5. Justifiability   6. Transparency
    7. Financial disclosure   8. Advertising policy



HONcode status
HONcode status

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Do you think the site is not respecting the HONcode? Do not hesitate to report a claim on this site

The Health on the Net (HON) certificate serves as a guarantee that this website, at the date of its certification, complies with and pledges to honor the 8 principles of the HON Code of Conduct as drawn up by the HON foundation.

The responsible of the certified site commits to keep the site in compliance with the HON code principles for the duration of the certification.

Although measures such as a complaint mechanism, the periodical review and the automatic surveillance mechanisms are put in place to guarantee the compliance of the certified website with the ethical principles of HON as much as possible, incidental inaccuracies cannot be completely excluded. In no event the HON foundation and/or its partner(s) can be held liable for any damages resulting from the use or inability to use HON certified websites nor can the HON foundation and/or its partner(s) be held liable for the content of these certified websites, including, but not limited to the information of third-parties or hyperlinks accessible via HON certified websites.

The certified website is responsible for the content of its website, unless otherwise provided by law.

 

>> More information about the HONcode?

You will find below the elements identified by the HONcode team at a precise date to justify the respect of the 8 ethical principles.

The content of this certificate has been collected and written by the Health On the Net Foundation (HON) and should not be used without previous permission granted by HON. A request for permission can be sent to: HON.

1. Information must be authoritative
First, the website of the Parent's Guide to Cord Blood Foundation is designed to educate, not advise. It is our goal to provide readers with the education they need to make their own informed choices.

Second, the educational material on this web site is either written or reviewed by Frances Verter, PhD. That PhD is in astrophysics from Princeton University, 1983. Thus, the author is not trained as a medical professional, the author is trained as a professional scientist. The author has learned nursing skills through the experience of having a child with cancer, and has learne...
  (12 Aug 2011) - Link

2. Presentation of the site
Mission:
Mission Statement
The primary mission of the Parent's Guide to Cord Blood is to educate parents with accurate and current information about cord blood medical research and cord blood storage options. This web site explains the medical motivations for banking umbilical cord blood, and the difference between public bank donation versus paying for private storage.

The second mission of the Parent's Guide to Cord Blood is to conduct and publish statistical analyses on medical research or policy developments which could expand the likelihood of cord blood usage.
  (12 Aug 2011) - Link

Audience:
It is our goal to provide readers with the education they need to make their own informed choices.
  (12 Aug 2011) - Link

Purpose of the website
The information provided on this site is designed to support, not replace, the relationship that exists between a reader and his/her existing physician. That being said, unfortunately many personal physicians are not very knowledgeable about cord blood stem cells and cord blood banking.
  (12 Aug 2011) - Link

3. Confidentiality
3. Privacy
Respect the privacy and confidentiality of personal data submitted to the site by a visitor:

Any tracking data collected by this website is only done as aggregate statistics, with no preservation of individual identities.


Readers of this website often submit Emails describing their medical history and seeking help. Often these cases must be referred to one of the Medical Advisors of the Foundation or to additional medical professionals who specialize in the appropriate areas. The reader's personal identifying information is never passed on w...
  (12 Aug 2011) - Link

4. Information must be documented: Referenced and dated
Only data for one sample are displayed among those selected.
Leukemias (ALLOgeneic therapy)
( Leukemia is a cancer of the blood immune system, whose cells are called leukocytes or white cells)

http://www.lls.org/diseaseinformation/leukemia/
  (12 Aug 2011) - Link

next step...Last modified: 06.January 2011

  (12 Aug 2011) - Link

5. Justification of claims
This principle is not applicable for this site 

6. User support and adequation
Contact Us
  (12 Aug 2011) - Link

7. Disclosure of funding sources
7. Financial Disclosure
Identify funding sources:

The Parent's Guide to Cord Blood Foundation was incorporated as a non-profit on 27 April 2007. We received our 501(c)(3) determination letter from the IRS on 8 January 2008. The annual financial filings of the Foundation, IRS form 990, are a matter of public record and list all large donors. In addition, we display the names of large donors on web pages of corporate and individual sponsors. The page on Website Policy describes our procedures to ensure there is no preferential treatment in the content of this web site.
  (12 Aug 2011) - Link

8. Advertising policy
8. Advertising Policy

This is easy, there is no advertising on this web site.
  (12 Aug 2011) - Link

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