HONcode certificate: respect of the 8 HONcode principles by the health website

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Certificate of compliance with the Code of Conduct HONcode

The health Website
The XLH Network
is in compliance with the HONcode

Title of the site: The XLH Network
Web address: http://www.xlhnetwork.org/
HONcode PIN number : HONConduct895548
Date of initial review: 13 Feb 1997
Validity of certificate 23 Aug 2011 - Aug 2013
Date of last visit 10 Jul 2012

This certificate confirms the revision of the site by the HONcode Team at the above date.
It respects and pledges to honor the 8 principles of the HON Code of Conduct (HONcode).

* 1. Authoritative 2. Complementarity 3. Privacy 4. Attribution 5. Justifiability 6. Transparency
7. Financial disclosure 8. Advertising policy

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Do you think the site is not respecting the HONcode?

The Health on the Net (HON) certificate serves as a guarantee that this website, at the date of its certification, complies with and pledges to honor the 8 principles of the HON Code of Conduct as drawn up by the HON foundation.

The responsible of the certified site commits to keep the site in compliance with the HON code principles for the duration of the certification.

Although measures such as a complaint mechanism, the periodical review and the automatic surveillance mechanisms are put in place to guarantee the compliance of the certified website with the ethical principles of HON as much as possible, incidental inaccuracies cannot be completely excluded. In no event the HON foundation and/or its partner(s) can be held liable for any damages resulting from the use or inability to use HON certified websites nor can the HON foundation and/or its partner(s) be held liable for the content of these certified websites, including, but not limited to the information of third-parties or hyperlinks accessible via HON certified websites.

The certified website is responsible for the content of its website, unless otherwise provided by law.

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You will find below the elements identified by the HONcode team at a precise date to justify the respect of the 8 ethical principles.

The content of this certificate has been collected and written by the Health On the Net Foundation (HON) and should not be used without previous permission granted by HON. A request for permission can be sent to: HON.

1. Information must be authoritative

Scientific advisors
URL: http://www.xlhnetwork.org/index.php/about-us/scientific-advisors/

Unless otherwise stated, the information on these pages has not been written by medical professionals nor by individuals with any specialized medical training. nformation on these pages is based on biomedical research, published in peer-reviewed journals, and international research conferences.
(23 Aug 2011) -

2. Presentation of the site
Mission:

Our Mission Statement "to facilitate advocacy, education and research for XLH and related disorders by creating resources and a community for affected families, educating and supporting physicians and other providers of medical care, and fostering the search for a cure"
(23 Aug 2011) -

Audience:

A worldwide patient support organization for people living and dealing with X-linked Hypophosphatemia (XLH)
(23 Aug 2011) -

Purpose of the website

The information provided here is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her existing doctor.
(23 Aug 2011) -

3. Confidentiality

Privacy Policy
(23 Aug 2011) -

4. Information must be documented: Referenced and dated

At the bottom of each page, users can see the following statement: "The authors of this web site are not medical professionals, and this information does not substitute for medical care. Information on these pages is based on biomedical research, published in peer-reviewed journals, and international research conferences".

Only data for one sample are displayed among those selected.

Source: The XLH Network Board of Directors
(23 Aug 2011) -

Last modified Jun 4, 2012
(10 Jul 2012) -

5. Justification of claims

This principle is not applicable for this site

6. User support and adequation

Contact Us
(23 Aug 2011) -

7. Disclosure of funding sources

The website, F-HYPDRR listserv, XLH Forum and our activities to raise awareness about XLH have been supported primarily through donations from people affected by these disorders, their friends and loved ones. We have not yet received any funding from any governmental agency, school or university, nor have we received any funding in exchange for any advertising or other promotion.
(23 Aug 2011) -

8. Advertising policy

We have not received any funding in exchange for any advertising or other promotion.
(23 Aug 2011) -

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