Certificate of compliance

The XLH Network

is in compliance with the HONcode

Logo certificat HONCode
19 Years

Certificate validity: 01 Sep 2016 - Sep 2017

www.xlhnetwork.org Visit website

Logo certificat HONCode
HONcode identification number:


Date of initial review:

13 Feb 1997

Certificate validity:

01 Sep 2016 - Sep 2017

Date of last visit:

01 Sep 2016
See the HONcode seal on the site

Content identified by the HONcode team

The content below is a sample of the content identified at a specific date by the HONcode team that justifies the respect of the eight ethical principles.

Unless otherwise stated, the information on these pages has not been written by medical professionals nor by individuals with any specialized medical training. Every effort has been made to ensure the accuracy of the information provided on the website, but The XLH Network, Inc. can neither be held responsible for such information nor be held responsible for information on linked sites. Information on this website does not necessarily represent the opinions of other people or organizations that The XLH Network, Inc. may be affiliated with.

(11 Mar 2016) - Link

The information provided here is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her existing doctor.

(11 Mar 2016) - Link

Privacy Policy
The XLH Network, Inc. does not sell, rent, exchange or otherwise disclose our mailing lists or information about our site visitors, subscribers or members. We subscribe to the HONcode principles of the Health On the Net Foundation.
Our F-HYPDRR mailing list is distributed to members world-wide via the Internet. It is a moderated subscription list, acting as a semi-public forum in which The XLH Network, Inc. members can share information and their experiences. The XLH Network, Inc. endeavors to include medical professionals and researchers who are particularly interested in XLH, as well as XLH patients and their families. Although privacy is a matter of serious concern to all of The XLH Network, Inc. members, everyone needs to be aware that information posted via the internet can never be guaranteed to be completely confidential.
Currently we are using Google Analytics to analyze the audience of the website and improve our content. No personal information is collected from Google Analytics. For further information on the privacy policy concerning Google Analytics, please go here,

Please note also that our web site uses Google analytics cookies. By using this website you consent to the use of cookies in accordance with this policy. In particular, you accept the use of cookies. If you do not consent to the use of these cookies please disable them in your browser so that cookies from this website cannot be placed on your device.
For further information of Google’s privacy practices and how this applies to Google analytics, please visit:



(01 Sep 2016) - Link

The data displayed correspond to only one of the selected samples.

X-linked hypophosphatemic rickets: a disease often unknown to affected patients.
1994. Michael J. Econs, Gregory P. Samsa, Michael Monger, Marc K. Drezner, John R. Feussner. Bone and Mineral 24:17-24.
PubMed ID: 8186731
New perspectives on the biology and treatment of X-Linked Hypophosphatemic rickets.
Carpenter, Thomas O.; Pediatric Clinics of North America 44(2): 443-466 (1997)
PubMed ID: 9130929
Diagnosis of X-linked hypophosphatemic vitamin D resistant rickets.
Yamamoto T.; Acta Paediatr Jpn. 1997 Aug;39(4):499-502.
PubMed ID: 9316300
Hypophosphatemic rickets: still misdiagnosed and inadequately treated.
Greene WB, Kahler SG.; South Med J. 1985 Oct;78(10):1179-84.
PubMed ID: 2996152

(11 Mar 2016) - Link

Last modified Mar 28, 2016

(01 Sep 2016) - Link

This principle is not applicable to this site 

Contact Us
General questions:
Submit fundraising idea, or offer to help with an event:
Need help finding a specialist: Click here.
Click here to provide name and contact info of a specialist.
Mailing Address
The XLH Network, Inc.
911 Central Ave., #161
Albany, NY 12206

(11 Mar 2016) - Link

The website, F-HYPDRR listserv, XLH Forum and our activities to raise awareness about XLH have been supported primarily through donations from people affected by these disorders, their friends and loved ones.

(11 Mar 2016) - Link

We have not yet received any funding from any governmental agency, school or university, nor have we received any funding in exchange for any advertising or other promotion.

The content of this certificate has been collected by the HON Foundation and may not be used without HON's express consent.

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The HONcode's significance

The Health On the Net (HON) certificate guarantees that this website complies with the eight principles of the HON Foundation's Code of Conduct at the date indicated above. The persons responsible for the site commit to maintaining its compliance with the HONcode principles for the duration of the site’s certification.

However, despite the complaint system that has been put in place and the periodic review and automatic monitoring of certified sites to ensure maximum compliance with the HONcode ethical principles, it is impossible to eliminate all risks of incoherence that may appear.

Under no circumstances shall the HON Foundation and/or its partner(s) be held liable for any damages resulting from the use or the inability to use HONcode-certified websites. Similarly, the HON Foundation and/or its partner(s) shall not be held liable for the content of such certified websites or any other website accessible via a hypertext link or through third-party information.

Those responsible for the certified website are responsible for the content of the website unless otherwise provided by law.

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