>>
You will find below the elements identified by the HONcode team at a precise date to justify the respect of the 8 ethical principles.
The content of this certificate has been collected and written by the Health On the Net Foundation (HON) and should not be used without previous permission granted by HON. A request for permission can be sent to:
HON.
|
| 1. Information must be authoritative |
Our Medical Advisory Council
URL: http://hkpp.org/about-us/medical-council
|
Unless otherwise specified, the articles in this website have been authored or compiled by Deborah Cavel-Greant.
(02 Sep 2011) -
|
For the collaborative platform:
The HKPP Listserv is monitored at all times by volunteer administrators who are on our Patient Advisory Council. All members are bound by the Rules and Guidelines of the HKPP Listserv and may be removed at the discretion of the administrators.
URL: http://hkpp.org/hkpp-listserv
The owners of the HKPP Listserv determine eligibility for membership and may remove any member, with or without reason, at any time.
Members do not have access to a list of other member's names and e-mail addresses. We do not allow harvesting of members for any reason. All applicants are screened. Anyone who joins this list under false pretenses will be immediately unsubscribed. This Listserv membership includes young people, and content is kept family-safe.
(02 Sep 2011) -
|
2. Presentation of the site
Mission:
The Periodic Paralysis News Desk is the website of the HKPP Listserv. The HKPP Listserv is an on-line group which provides medically accurate, up-to-date information and peer support to patients with periodic paralysis, their families, caregivers and medical professionals.
URL: http://www.hkpp.org/general/honcode.html
|
Our website reflects our mission to make medically accurate, up-to-date information about the periodic paralyses accessible to patients, caretakers and physicians.
Our goal is to help create successful partnerships between physicians, researchers and periodic paralysis patients in order to speed diagnosis and improve therapy and management strategies, thereby improving quality of life and clinical outcomes for patients.
(02 Sep 2011) -
|
For the collaborative platform:
Our goals are:
- To support each other and share our experiences.
- To help each other develop effective management skills.
- To seek out and share reliable medical information.
(02 Sep 2011) -
|
| Audience:
|
Our website reflects our mission to make medically accurate, up-to-date information about the periodic paralyses accessible to patients, caretakers and physicians.
(02 Sep 2011) -
|
For the collaborative platform:
We invite medically diagnosed patients to join the HKPP Listserv. (...) The List is open to medically diagnosed patients, a patient's immediate family member or caregiver.
(02 Sep 2011) -
|
| Purpose of the website
|
DISCLAIMER
The information on this site is based on current medical knowledge but should never at any time be substituted for the advice and care of a properly qualified medical consultant. For medical advice seek the services of a physician.
(02 Sep 2011) -
|
For the collaborative platform:
.
(18 Aug 2011) -
|
| 3. Confidentiality |
Privacy Statement
(02 Sep 2011) -
|
For the collaborative platform:
- When quoting another person, please edit any quotations down to the minimum necessary to provide context for your reply.
- Please do not forward personal e-mail to or from this Listserv without the original author's permission.
- If your post is directed to a single individual and not of general interest please e-mail that person directly.
(02 Sep 2011) -
|
| 4. Information must be documented: Referenced and dated |
See also point 4 (Attribution) at http://www.hkpp.org/general/honcode.html
|
| Only data for one sample are displayed among those selected. |
1: Ned Tijdschr Geneeskd 2000 Jun 17;144(25):1228-30, Fatal anaphylactic reaction after oral acetazolamide (diamox) for glaucoma; Gerhards LJ, van Arnhem AC, Holman ND, Nossent GD Afd. Cardiologie, Martini Ziekenhuis, Groningen. PMID: 10897303, UI: 20355494
(02 Sep 2011) -
|
For the collaborative platform:
Please cite all quotes, references and sources and respect copyright and license agreements.
(02 Sep 2011) -
|
|
|
What is Periodic Paralysis?
Last updated Tuesday, June 21st, 2011
(02 Sep 2011) -
|
For the collaborative platform:
The Art of Listening Award
Friday, August 7, 2009
Posted by Deb at 5:45 PM 1 comments
(18 Aug 2011) -
|
| 5. Justification of claims |
Physician's Sheet: Acetazolamide Drug Interactions
Adverse Reactions
(02 Sep 2011) -
|
For the collaborative platform:
- Please stay on topic.
- Please extend courtesy. Think before you post. Absolutely no flaming.
- Our membership is drawn from around the world and from many cultures. Please leave your religious, political and cultural differences at the door.
(02 Sep 2011) -
|
| 6. User support and adequation |
E-form provided.
|
Contact
(02 Sep 2011) -
|
|
|
Transparency: The designers of the PPI website provide information in the clearest possible manner and provide contact addresses for visitors that seek further information or support. The email address of the webmaster is clearly displayed throughout the website.
(02 Sep 2011) -
|
| 7. Disclosure of funding sources |
See also: "About Our Organizational Structure"
URL: http://hkpp.org/about-us/our-organization
|
Financial disclosure: Periodic Paralysis international is a non-profit corporation registered in Alberta Canada.
(02 Sep 2011) -
|
For the collaborative platform:
The HKPP Listserv is monitored at all times by volunteer administrators who are on our Patient Advisory Council (Link: http://hkpp.org/about-us/patient-council)
(02 Sep 2011) -
|
| 8. Advertising policy |
Sponsorship: The PPI is not affiliated with any commercial entity. There is no advertising content on the site.
(02 Sep 2011) -
|
For the collaborative platform:
Please do not post announcements and advertisements to this Listserv. All announcements and notices must be cleared through Listserv Management.
(02 Sep 2011) -
|
