Certificate of compliance

PatientsLikeMe

is in compliance with the HONcode

Logo certificat HONCode
5 Years

Certificate validity 12 Jul 2013 - Jul 2015

www.patientslikeme.com Visit website

Logo certificat HONCode
HONcode identification number:

HONConduct682674

Date of initial review:

08 Jan 2008

Certificate validity

12 Jul 2013 - Jul 2015

Date of last visit:

29 Mar 2016
See the HONcode seal on the site

Content identified by the HONcode team

The content below is a sample of the content identified at a specific date by the HONcode team that justifies the respect of the eight ethical principles.

Our Team
 

(12 Jul 2013) - Link

Collaborative platforms:
Molly Cotter Community Moderator
Liz Morgan Community Team Manager
Emma Willey Community Moderator
Sarah Mack Community Moderator
www.patientslikeme.com/community/admins

While some community areas in the Member Area are monitored periodically for topicality, PatientsLikeMe has no obligation to prescreen postings and is not responsible for their content. We encourage you to notify us of inappropriate or illegal content and we reserve the right to remove postings for any reason.

(12 Jul 2013) - Link

This Site Does Not Provide Medical Advice
All of the material provided on the Site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings, and any other material provided on the Site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health. Never disregard professional medical advice or delay in seeking it because of something ...
 

(12 Jul 2013) - Link

Collaborative platforms:

This Site Does Not Provide Medical Advice
All of the material provided on the Site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings, and any other material provided on the Site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health. Never disregard professional medical advice or delay in seeking it because of something ...

(05 Feb 2013) - Link

What kind of information we collect
Shared Data
Some of the information that Members provide about themselves may be shared with the PatientsLikeMe community, Partners, and others (“Shared Data”). Examples of Shared Data that Members may submit at the Site, including through their health profile (“My Profile”), may include:
* Biographical information, e.g. photograph, biography, gender, age, location (city, state and country), general notes;
* Condition/disease information, e.g. diagnosis date, first symptom, family history;
* Treatment informati...
 

(12 Jul 2013) - Link

Collaborative platforms:

Yes, you can modify or erase any of your forum posts at any time by clicking ‘Edit’ underneath your post. A post cannot be blank, but you may put any filler text in the text field (e.g., “deleted” or “amended”).

(12 Jul 2013) - Link

The data displayed correspond to only one of the selected samples.

Every effort has been made to ensure that the information provided by Cerner Multum, Inc. ('Multum') is accurate, up-to-date, and complete, but no guarantee is made to that effect.
 

(12 Jul 2013) - Link

Collaborative platforms:

We encourage members to share relevant news stories, journal articles, and blog posts with the community. We do ask that members include a reference or link back to the source.

(12 Jul 2013) - Link

About and policy pages also dated:
e.g. www.patientslikeme.com/about/team
Last updated: July 12, 2013
 

Last updated: July 12, 2013
 

(12 Jul 2013) - Link

Collaborative platforms:

Feb 5, 2013 09:08AM

(05 Feb 2013) - Link

ok, all necessary info provided

Gabapentin Treatment Report
What is Gabapentin?
Precautions
Instructions
Side Effects
Interactions
Other names
 

(12 Jul 2013) - Link

Collaborative platforms:

All members represent and warrant that the information they provided when registering as a member, and all information that they subsequently provide regarding themselves and their membership, is true and accurate and not misleading.

(05 Feb 2013) - Link

Contact Us
Mailing address:
PatientsLikeMe Inc.
155 Second Street
Cambridge, MA 02141

 

(12 Jul 2013) - Link

Collaborative platforms:

Contact Us
Mailing address:
PatientsLikeMe Inc.
155 Second Street
Cambridge, MA 02141

(05 Feb 2013) - Link


We take the information patients like you share about your experience with the disease and sell it to our partners (i.e., companies that are developing or selling products to patients). These products may include drugs, devices, equipment, insurance, and medical services. Except for the restricted personal information you entered when registering for the site, you should expect that every piece of information you submit (even if it is not currently displayed) may be shared with our partners and any member of PatientsLikeMe, including other patients. We do not rent, sell or share personally identifiable information for marketing purposes or without explicit consent. Because we believe in transparency, we tell our members exactly what we do and do not do with their data.
By selling this data and engaging our partners in conversations about patient needs, we're helping them better understand the real world medical value of their products so they can improve them. We are also helping companies accelerate the development of new solutions for patients.
PatientsLikeMe is a for-profit company (with a not-just-for-profit attitude). Every partnership we develop must bring us closer to aligning patient and industry interests. Our end goal is improved patient care and quality of life.


Investors
CommerceNet
An invaluable part of PatientsLikeMe's success, CommerceNet provided the seed capital, guidance, additional management experience, and key connections to help kick start PatientsLikeMe. CommerceNet's innovative model combines the best elements of a research lab, startup incubator and public interest initiative. Its mission is to make the world a better place by fulfilling the promise of the Internet and ecommerce. CommerceNet's Founder and Chairman, Dr. Jay 'Marty' Tenenbaum, is personally involved with PatientsLikeMe as a board member and advisor.
...
 

(12 Jul 2013) - Link

Collaborative platforms:
Moderators are members of the team.
Molly Cotter Community Moderator
Liz Morgan Community Team Manager
Emma Willey Community Moderator
Sarah Mack Community Moderator

(05 Feb 2013) - Link

We're not pursuing an ad-based business model right now. We want to preserve the sanctity of your experience on the site. Our business is based on aligning your interests as patients with industry interests. To do this, we share your data and experiences with industry to help them better understand the real world course of diseases.
 

(12 Jul 2013) - Link

Collaborative platforms:

The Site content, including the Member Area and the content and information contained in the Member Area, is for the personal use of individual members only and may not be used in connection with any commercial endeavors. Organizations, companies, and/or businesses may not become members and should not use the Site without express consent from PatientsLikeMe. Members of PatientsLikeMe with individual commercial interests may not solicit or overtly promote their products or services within the Member Area. All content shared within the site is not for external use.

(05 Feb 2013) - Link

The content of this certificate has been collected by the HON Foundation and may not be used without HON's express consent.

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The HONcode's significance

The Health On the Net (HON) certificate guarantees that this website complies with the eight principles of the HON Foundation's Code of Conduct at the date indicated above. The persons responsible for the site commit to maintaining its compliance with the HONcode principles for the duration of the site’s certification.

However, despite the complaint system that has been put in place and the periodic review and automatic monitoring of certified sites to ensure maximum compliance with the HONcode ethical principles, it is impossible to eliminate all risks of incoherence that may appear.

Under no circumstances shall the HON Foundation and/or its partner(s) be held liable for any damages resulting from the use or the inability to use HONcode-certified websites. Similarly, the HON Foundation and/or its partner(s) shall not be held liable for the content of such certified websites or any other website accessible via a hypertext link or through third-party information.

Those responsible for the certified website are responsible for the content of the website unless otherwise provided by law.

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