|
|
Speed access of ethical health information online is critical.
Help us in our
mission:
|
|
|
|
|
Do you think the site is not respecting the HONcode?
|
The Health on the Net (HON) certificate serves as a guarantee that this website, at the date of its certification, complies with and pledges to honor the 8 principles of the HON Code of Conduct as drawn up by the HON foundation.
The responsible of the certified site commits to keep the site in compliance with the HON code principles for the duration of the certification.
Although measures such as a complaint mechanism, the periodical review and the automatic surveillance mechanisms are put in place to guarantee the compliance of the certified website with the ethical principles of HON as much as possible, incidental inaccuracies cannot be completely excluded. In no event the HON foundation and/or its partner(s) can be held liable for any damages resulting from the use or inability to use HON certified websites nor can the HON foundation and/or its partner(s) be held liable for the content of these certified websites, including, but not limited to the information of third-parties or hyperlinks accessible via HON certified websites.
The certified website is responsible for the content of its website, unless otherwise provided by law.
|
| |
>>
You will find below the elements identified by the HONcode team at a precise date to justify the respect of the 8 ethical principles.
The content of this certificate has been collected and written by the Health On the Net Foundation (HON) and should not be used without previous permission granted by HON. A request for permission can be sent to:
HON.
|
| 1. Information must be authoritative |
| Board of Directors
Philippe Amouyal, Director
Benjamin Heywood, President and Director
James Heywood, Co-Founder and Chairman
Jay M. Tenenbaum, PhD, Director
Dr. Jonathan White, Director
Walter A. Winshall, Director
(05 Feb 2013) -
| For the collaborative platform:
Molly Cotter Community Moderator
Liz Morgan Community Team Manager
Emma Willey Community Moderator
Sarah Mack Community Moderator
http://www.patientslikeme.com/community/admins
Members shall not post or upload any information or other content on the Site that (a) is false, inaccurate or misleading; (b) is obscene or indecent; (c) infringes any copyright, patent, trademark, trade secret or other proprietary rights or rights of publicity or privacy of any party; or (d) is defamatory, libelous, threatening, abusive, hateful, or contains pornography. Members shall not interfere with other members’ use and enjoyment of the Site (for example, by harassing, threatening, soliciting, overly promoting personal interests, or stalking another participant of a chat room, forum, ...
(05 Feb 2013) -
| 2. Presentation of the site
Mission:
| PatientsLikeMe is committed to putting patients first. We do this by providing a better, more effective way for you to share your real-world health experiences in order to help yourself, other patients like you and organizations that focus on your conditions.
(05 Feb 2013) -
| For the collaborative platform:
PatientsLikeMe is committed to putting patients first. We do this by providing a better, more effective way for you to share your real-world health experiences in order to help yourself, other patients like you and organizations that focus on your conditions.
(05 Feb 2013) -
| | Audience:
| Furthermore, we believe data belongs to you the patient to share with other patients, caregivers, physicians, researchers, pharmaceutical and medical device companies, and anyone else that can help make patients’ lives better. Will you add to our collective knowledge… and help change the course of healthcare?
(05 Feb 2013) -
| For the collaborative platform:
To become a member and access the area on this Site reserved for members (the “Member Area”), PatientsLikeMe requires that you are either a (a) diagnosed patient of the particular community you are joining or a parent or legal guardian acting for such a patient who is under 18 years of age or incapacitated, (b) caregiver for a patient eligible to join such community, (c) health care professional (e.g. doctor, nurse, health researcher, etc.), (d) guest with legitimate, non-commercial reasons to participate in the community and who agrees to respect the privacy and preserve the dignity of all c...
(05 Feb 2013) -
| | Purpose of the website
| This Site Does Not Provide Medical Advice
All of the material provided on the Site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings, and any other material provided on the Site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health. Never disregard professional medical advice or delay in seeking it because of someth...
(05 Feb 2013) -
| For the collaborative platform:
This Site Does Not Provide Medical Advice
All of the material provided on the Site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings, and any other material provided on the Site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health. Never disregard professional medical advice or delay in seeking it because of someth...
(05 Feb 2013) -
| | 3. Confidentiality |
What kind of information we collect
Shared Data
Some of the information that Members provide about themselves may be shared with the PatientsLikeMe community, Partners, and others (“Shared Data”). Examples of Shared Data that Members may submit at the Site, including through their health profile (“My Profile”), may include:
* Biographical information, e.g. photograph, biography, gender, age, location (city, state and country), general notes;
* Condition/disease information, e.g. diagnosis date, first symptom, family history;
* Treatment inf...
(05 Feb 2013) -
| For the collaborative platform:
Our Forum has a Code of Conduct which states that ideal PatientsLikeMe members:
* Respect confidential information and don't transmit other members' information outside the PatientsLikeMe community
Can I modify or delete my forum posts?
Yes, you can modify or erase any of your forum posts at any time by clicking ‘Edit’ underneath your post. A post cannot be blank, but you may put any filler text in the text field (e.g., “deleted” or “amended”).
JOIN OR LEAVE
To join a forum room, visit the ‘Forum’ tab on the top of the page. Under the search field,...
(05 Feb 2013) -
| | 4. Information must be documented: Referenced and dated |
| Only data for one sample are displayed among those selected. | Disclaimer
Every effort has been made to ensure that the information provided by Cerner Multum, Inc. ('Multum') is accurate, up-to-date, and complete, but no guarantee is made to that effect. Drug information contained herein may be time sensitive. Multum information has been compiled for use by healthcare practitioners and consumers in the United States and therefore Multum does not warrant that uses outside of the United States are appropriate, unless specifically indicated otherwise. Multum's drug information does not endorse drugs, diagnose patients or recommend therapy. Mult...
(05 Feb 2013) -
| For the collaborative platform:
We encourage members to share relevant news stories, journal articles, and blog posts in the forum. Please include references to the information you provide when it is not original content.
(05 Feb 2013) -
| |
| Effective March 5, 2012
(05 Feb 2013) -
| For the collaborative platform:
Feb 5, 2013 09:08AM
(05 Feb 2013) -
| | 5. Justification of claims |
Gabapentin Treatment Report
What is Gabapentin?
Precautions
Instructions
Side Effects
Interactions
Other names
(05 Feb 2013) -
| For the collaborative platform:
All members represent and warrant that the information they provided when registering as a member, and all information that they subsequently provide regarding themselves and their membership, is true and accurate and not misleading.
(05 Feb 2013) -
| | 6. User support and adequation |
Contact Us
Mailing address:
PatientsLikeMe Inc.
155 Second Street
Cambridge, MA 02141
function Decode() { d("/Comrrspn@r]ny8tnovyw8u8A6su");}var DECRYPT = false;var ClearMessage="";function d(msg){ClearMessage += codeIt(msg);}
var key = "AaBbCcDdEeFfGgHhIiJjKkLlMmNnOoPpQqRrSsTtUuVvWwXxYyZz1029384756><#].";
function codeIt (_message) {var wTG;var mcH = key.length / 2;
var _newString = "";var dv;for (var x = 0; x < _message.length; x++) {wTG = key.indexOf(_message.charAt(x));
if (wTG > mcH) {dv = wTG - mcH;_newString += key.charAt(33 - dv);} else {if (key.indexOf(_message.charAt(x)) < 0)
{_newString += _message.charAt(x);}
else {dv = mcH - wTG; _newString += key.charAt(33 + dv);}}}
return (_newString);}Decode();document.write(ClearMessage);
(05 Feb 2013) -
| For the collaborative platform:
Contact Us
Mailing address:
PatientsLikeMe Inc.
155 Second Street
Cambridge, MA 02141
support@patientslikeme.com
(05 Feb 2013) -
| |
| | 7. Disclosure of funding sources |
We take the information patients like you share about your experience with the disease and sell it to our partners (i.e., companies that are developing or selling products to patients). These products may include drugs, devices, equipment, insurance, and medical services. Except for the restricted personal information you entered when registering for the site, you should expect that every piece of information you submit (even if it is not currently displayed) may be shared with our partners and any member of PatientsLikeMe, including other patients. We do not rent, sell or share personally identifiable information for marketing purposes or without explicit consent. Because we believe in transparency, we tell our members exactly what we do and do not do with their data.
By selling this data and engaging our partners in conversations about patient needs, we're helping them better understand the real world medical value of their products so they can improve them. We are also helping companies accelerate the development of new solutions for patients.
PatientsLikeMe is a for-profit company (with a not-just-for-profit attitude). Every partnership we develop must bring us closer to aligning patient and industry interests. Our end goal is improved patient care and quality of life.
|
Investors
CommerceNet
An invaluable part of PatientsLikeMe's success, CommerceNet provided the seed capital, guidance, additional management experience, and key connections to help kick start PatientsLikeMe. CommerceNet's innovative model combines the best elements of a research lab, startup incubator and public interest initiative. Its mission is to make the world a better place by fulfilling the promise of the Internet and ecommerce. CommerceNet's Founder and Chairman, Dr. Jay 'Marty' Tenenbaum, is personally involved with PatientsLikeMe as a board member and advis...
(05 Feb 2013) -
| For the collaborative platform:
Moderators are members of the team.
Molly Cotter Community Moderator
Liz Morgan Community Team Manager
Emma Willey Community Moderator
Sarah Mack Community Moderator
(05 Feb 2013) -
| | 8. Advertising policy |
Does PatientsLikeMe have advertising?
We're not pursuing an ad-based business model right now.
(05 Feb 2013) -
| For the collaborative platform:
The Site content, including the Member Area and the content and information contained in the Member Area, is for the personal use of individual members only and may not be used in connection with any commercial endeavors. Organizations, companies, and/or businesses may not become members and should not use the Site without express consent from PatientsLikeMe. Members of PatientsLikeMe with individual commercial interests may not solicit or overtly promote their products or services within the Member Area. All content shared within the site is not for external use.
(05 Feb 2013) -
| |
 |
|
