HONcode certificate: respect of the 8 HONcode principles by the health website

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Certificate of compliance with the Code of Conduct HONcode

The health Website
The MHE Research Foundation
is in compliance with the HONcode

Title of the site: The MHE Research Foundation
Web address: http://www.mheresearchfoundation.org/
Mirror address(es): http://www.mhe-hme.org/
HONcode PIN number : HONConduct282463
Date of initial review: 14 Aug 2006
Validity of certificate 21 Oct 2012 - Oct 2014
Date of last visit 21 Oct 2012

This certificate confirms the revision of the site by the HONcode Team at the above date.
It respects and pledges to honor the 8 principles of the HON Code of Conduct (HONcode).

* 1. Authoritative 2. Complementarity 3. Privacy 4. Attribution 5. Justifiability 6. Transparency
7. Financial disclosure 8. Advertising policy

Speed access of ethical health information online is critical.

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The Health on the Net (HON) certificate serves as a guarantee that this website, at the date of its certification, complies with and pledges to honor the 8 principles of the HON Code of Conduct as drawn up by the HON foundation.

The responsible of the certified site commits to keep the site in compliance with the HON code principles for the duration of the certification.

Although measures such as a complaint mechanism, the periodical review and the automatic surveillance mechanisms are put in place to guarantee the compliance of the certified website with the ethical principles of HON as much as possible, incidental inaccuracies cannot be completely excluded. In no event the HON foundation and/or its partner(s) can be held liable for any damages resulting from the use or inability to use HON certified websites nor can the HON foundation and/or its partner(s) be held liable for the content of these certified websites, including, but not limited to the information of third-parties or hyperlinks accessible via HON certified websites.

The certified website is responsible for the content of its website, unless otherwise provided by law.

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You will find below the elements identified by the HONcode team at a precise date to justify the respect of the 8 ethical principles.

The content of this certificate has been collected and written by the Health On the Net Foundation (HON) and should not be used without previous permission granted by HON. A request for permission can be sent to: HON.

1. Information must be authoritative

Scientific & Medical Advisory Board
(21 Oct 2012) -

2. Presentation of the site
Mission: Dedicated to the support of researchers, physicians and families dealing with MHE/MO. Not able to copy the exact text

RESEARCH
EDUCATION
ADVOCACY
CLINICAL
HOPE

(21 Oct 2012) -

Audience:

for researchers, physicians and families
(21 Oct 2012) -

Purpose of the website Footer of the site

Disclaimer: While many find the information useful, it is in no way a substitute for professional medical care.
The information provided here is for educational and informational purposes only. This website does not engage in the practice of medicine.
In all cases we recommend that you consult your own physician regarding any course of treatment or medicine.
(21 Oct 2012) -

3. Confidentiality

Privacy policy:
(21 Oct 2012) -

4. Information must be documented: Referenced and dated

Info taken from the 'Human Genome Project'

Only data for one sample are displayed among those selected.

A special thanks to Meghan E. Carey, Executive Director, National Society of Genetic Counselors (www.nsgc.org) for her review and updates to this page.
(21 Oct 2012) -

This web page was updated last on 6/21/09, 4:0O pm Eastern time
(21 Oct 2012) -

5. Justification of claims

This principle is not applicable for this site

6. User support and adequation

Footer of the site

Email the webmaster:
(21 Oct 2012) -

7. Disclosure of funding sources

The MHE Research Foundation is a non-profit organization exempt from Federal Income Taxes under Section 501(c)(3) of the
Internal Revenue Code. All donations made to our foundation are fully tax deductible and greatly appreciated. All donations go to
help this foundation in its efforts to the further understanding of MHE through research and education. The MHE Research
Foundation is a 100% voluntary organization, no salaries or personal benefits are paid to anyone.
(21 Oct 2012) -

8. Advertising policy

This website does not accept or host any advertisement.
(21 Oct 2012) -

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